Technical and Legal Aspects Relating to the (Re)Use of Health Data when Repurposing Machine Learning Models in the EU

Privacy policies often fail to uphold the goals of transparency – for individuals to understand the processing of their data and exercise their rights in a user-centered manner – which may lead to misalignment between privacy expectations and practices. Direct-to-consumer (DTC) genetic companies, expected to grow to more than 2.7 billion USD by 2032 in Europe, process sensitive data with many risks. The...